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Evaluation of the soundboardgroups in the Networks Palliative Care in Limburg, The Netherlands.


- candidate number10559
- NTR NumberNTR3189
- ISRCTNISRCTN wordt niet meer aangevraagd.
- Date ISRCTN created
- date ISRCTN requested
- Date Registered NTR21-nov-2011
- Secondary IDs70-71800-98-104 ZonMw
- Public TitleEvaluation of the soundboardgroups in the Networks Palliative Care in Limburg, The Netherlands.
- Scientific TitleEvaluation of the testcase 'soundboardgroups in the Networks Palliative Care in Limburg, The Netherlands.
- ACRONYM
- hypothesisThe purpose is to evaluate the effectivity of participation experienced by representators of palliative care-users in the six Networks Palliative Care on matters of content and decision making process of the Networks. And to make improvement suggestions for the soundboardgroups.
- Healt Condition(s) or Problem(s) studiedPalliative care , Terminal care
- Inclusion criteriaExperience in a Soundboardgroup or Network Palliative Care and having motivation to participate in the research.
- Exclusion criteriaNot enough experience in the Soundboardgroup or Network Palliative Care, less than one year mebership or participation in less than five meetings.
- mec approval receivedyes
- multicenter trialno
- randomisedno
- groupParallel
- TypeSingle arm
- Studytypeobservational
- planned startdate 1-dec-2011
- planned closingdate1-nov-2012
- Target number of participants37
- InterventionsInterviews, Dialoguegroups, recommended practises and Improvement suggestions for the soundboardgroups.
- Primary outcomeCritical incident method (Kemppainen):
In-depht interviews and Dialogue groups are used to find out the experienced effectivity.
Fieldnotes and observations for description of the process.
- Secondary outcomeKnowledge of the the effectivity of participation experienced by representators of palliative care-users in the six Networks Palliative Care on matters of content and decision making process of the Networks. Recommended practises and improvement suggestions for the soundboardgroups.
- TimepointsFirst phase: 12 interviews and 2 dialoguegroups with mebers of the soundboardgroups.
Second phase: 7 interviews and 1 dialoguegroup with members of the Networks Palliative Care and the advisor Huis voor de Zorg .
- Trial web siteN/A
- statusplanned
- CONTACT FOR PUBLIC QUERIESDrs. E. Stoffers
- CONTACT for SCIENTIFIC QUERIESDr. A. Moser
- Sponsor/Initiator Zorg Consumenten Limburg, Hogeschool Zuyd, Huis voor de Zorg
- Funding
(Source(s) of Monetary or Material Support)
ZON-MW, The Netherlands Organization for Health Research and Development, Hogeschool Zuyd, Huis voor de Zorg
- PublicationsN/A
- Brief summarySince 2001 user representatives from soundboard groups in the Networks Palliative Care are safeguarding the common interests of people in the palliative stage. User participation in the Networks Palliative Care is applied very practical, through the participation of user representatives in the soundboard groups. There are six in Limburg (NL), one soundboard group for each Network Palliative Care. Huis voor de Zorg Limburg supports the NPC's and their soundboard groups. Soundboard groups are much used as a method of user participation. But never before has been evaluated how effective this method is, and to what extent the support from Huis voor de Zorg contributes to the participation of user representatives. In this project we evaluate the effectivity of soundboard groups as a method of user participation. Furthermore we evaluate the support of Huis voor de Zorg. We develop a model for other parts of The Netherlands who also work with soundbordgroups. But not only for Networks Palliative Care but also for different environments.
- Main changes (audit trail)
- RECORD21-nov-2011 - 21-dec-2011


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