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- candidate number26687
- NTR NumberNTR6370
- ISRCTNISRCTN no longer applicable
- Date ISRCTN created
- date ISRCTN requested
- Date Registered NTR10-feb-2017
- Secondary IDs16-N-233 METCZ (Zuyderland
- Public TitleVerpleeg(t)huis
- Scientific TitleFollows
- ACRONYM
- hypothesis
- Healt Condition(s) or Problem(s) studiedNursing home, Dementia
- Inclusion criteriaResidents of psychogeriatric nursing homes in the Netherlands.
- Exclusion criteria-
- mec approval receivedyes
- multicenter trialno
- randomisedno
- groupParallel
- Type2 or more arms, non-randomized
- Studytypeintervention
- planned startdate 2-sep-2015
- planned closingdate2-sep-2019
- Target number of participants50
- InterventionsParticipatory Action Research intervention with family members of nursing home residents and nursing staff
- Primary outcomeThriving, quality of life of residents; involvement family members; person-centered care nursing staff
- Secondary outcomeresidents: MMSE, Barthel; family members: role perception, care burden and satisfaction; nursing staff: role perception, work satisfaction, social support, autonomy
- TimepointsT0, T6, T12
- Trial web site
- statusopen: patient inclusion
- CONTACT FOR PUBLIC QUERIES L.J.M. Hoek
- CONTACT for SCIENTIFIC QUERIES L.J.M. Hoek
- Sponsor/Initiator Maastricht University
- Funding
(Source(s) of Monetary or Material Support)
Academic Collaborative Centre on Care for Older People (ACC-OP)
- Publications-
- Brief summaryThis research aims to improve the daily life of nursing home residents with dementia, in where resident autonomy is of major importance. The aim is to continue own lifestyle for as long as possible within the nursing home.

As people with dementia get more and more dependent on the help of others, it remains very important to listen to their wishes and needs, and possibilities to address them, and to approach them as any other individual. The role of family is crucial and therefore, we want to increase family involvement and create partnerships between family and nursing staff as they become valued partners within the care for residents.

Even though there is a culture change within nursing homes to become more person- centered, nursing home care for people with dementia is still mainly task-oriented. ‘person-centered care’, ‘autonomy’ and ‘resident driven care’ are frequently used words within nursing homes. Daily practice, however, shows that everyone knows about these words but executing them has – up till now – been a challenge. Especially now, when expecting a growth of people with dementia in the near future, nursing home care becomes more complex as people tend to reside at home for as long as possible.

Therefore, nursing home care has to be organized differently in the future to better address resident’s individual needs and their family caregivers’. Both formal and informal caregivers are important, in where good collaboration between them is of essential importance.

This research follows an action research design with a pre- and posttest. Family caregivers and nursing staff were involved from the start of the project and are involved within action research working groups. With the use of Photovoice, we incorporate residents’ view on what is important and valuable to them within the working groups. To measure effects of these working groups and other interventions, we used questionnaires, interviews and observation. Besides, we conduct a process evaluation.
- Main changes (audit trail)
- RECORD10-feb-2017 - 27-aug-2017


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